As a small organization with limited resources, our goal is providing “easy access” to a growing network of organizations that provide services to our community. Patients and caregivers are asking for more personal support with experienced mentors. There’s nothing like talking with a fellow patient (or caregiver) who has walked in your shoes and understands […]
10 Year Anniversary – Blood Cancer Awareness Month 2020 by Lou Ann Donovan National Blood Cancer Awareness Month was designated in September 2010 by the U.S. Congress. The purpose of Blood Cancer Awareness Month is to bring attention to all blood cancers, including chronic blood cancers known as Myeloproliferative Neoplasms or MPNs. Every three minutes […]
Myeloproliferative blood cancers as a human neuroinflammation model for development of Alzheimer’s disease: evidences and perspectives Hans C. Hasselbalch, Vibe Skov, Lasse Kjær, Torben L. Sørensen, Christina Ellervik & Troels Wienecke Journal of Neuroinflammation volume 17, Article number: 248 (2020) Open Access This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or […]
by Lou Ann Donovan As states begin to reopen businesses and stay at home orders become less restrictive, people are starting to venture out in public more. Myeloproliferative Neoplasm (MPN) cancer patients are more vulnerable to the coronavirus because cancer and some treatments can weaken the immune system reducing the body’s ability to fight off […]
What is Telehealth? by Lou Ann Donovan Telehealth, also known as Telemedicine or Virtual Care, are broad terms covering all the ways healthcare providers remotely interact with their patients. Since the coronavirus outbreak, telehealth has become a highly effective method to evaluate and treat mild symptoms while minimizing a patient’s exposure to a potentially infectious […]
Authors: Morten Orebo Holmström, Sabrina Cordua, Vibe Skov, Lasse Kjær, Niels Pallisgaard, Christina Ellervik, Hans Carl Hasselbalch, Mads Hald Andersen Evidence of immune elimination, immuno-editing and immune escape in patients with hematological cancer Abstract There is mounting evidence that the immune system can spontaneously clear malignant lesions before they manifest as overt cancer, albeit this […]
Improving the next generation of drugs through patient-centric design for clinical trials by Dr. Richard Ghalie (Senior VP for Clinical Development at MEI Pharma) When a process works, it’s natural to try to repeat it rather than recreate or rethink it. This holds true in running clinical trials to develop new drugs: the main path […]
Open Access Article – Petiti J, Rosso V, Lo Iacono M, et al. Curcumin induces apoptosis in JAK2‐mutated cells by the inhibition of JAK2/STAT and mTORC1 pathways. J Cell Mol Med. 2019;23:4349–4357. Original article Click here to download the PDF CLICK HERE for article – Nutrition for MPN Patients
Slower walking pace linked to a higher likelihood of death and hospital visits; Researchers say gait speed should be used along with other vital signs to better tailor care (WASHINGTON, June 5, 2019) — How slow—or fast—older individuals with blood cancers are able to walk four meters (about 13 feet) holds critical information about their […]
by Scott Sanders (guest author) A cancer diagnosis is devastating but it isn’t a death sentence (in most cases). Myeloproliferative Neoplasms, MPNs, are treatable and with self-care, the long-term impact on your daily life can be reduced. Taking care of your body and mind is essential to surviving and living well. Slow down One of […]
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