About

MPN Cancer Connection Mission (MPN-CC)

To continue helping MPN patients by expanding the wide range of resources & patient education programs. While empowering patients to better understand treatment options and improve patient care by recognizing MPNs are a cancer, offering access to a broad range of benefits and program assistance.

About

MPN Cancer Connection (MPN-CC) was created by David Wallace. He is an outspoken "patient advocate" who has Polycythemia Vera, an uncommon MPN blood cancer. Speaking from the patient point of view, he experiences areas that need improvement and act upon those needs. MPN-CC partners with organizations who provide valuable resources to fellow patients.

Funds raised are used to create more educational programming and resources for patients. Our goal for 2019 is to add 1-2 staff members allowing us to directly serve 120 additional patients/year while raising MPN Awareness.

How it started

David Wallace was 47 when he was diagnosed with polycythemia vera (PV) in 2009. A self-proclaimed “aspiring web designer, publisher, writer, patient advocate and chief bottle washer,” David used his diagnosis as a motivating factor to push himself to always learn something new. Utilizing social media to connect with informed patients and to gain a better understanding of emerging treatments, he found himself in an intense period of adjusting to a new norm of having a rare blood cancer for which doctors didn’t have a standard protocol for treatment. David founded MPN-CC in 2015 to help fellow patients. His philosophy is straightforward: “Educating the patient is essential, so the patient can guide their physician to meet his or her needs.” MPN Cancer Connection is a “patient focused” organization, helping educate and empower MPN patients by providing the necessary resources and support.
300k

U.S. Patients


Are living with an MPN
148k

People


Are living with Polycythemia Vera (PV)
135k

People


Are living with Essential Thrombocythemia (ET)
18k

People


are living with Myelofibrosis (MF)
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