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MPN Websites

MPN Websites

You are your own best advocate.

Research and learn more about your myeloproliferative neoplasms (MNPs) from the following list of top research MPN organizations sharing the latest MPN information.

PV Reporter

Partner. Advocate. Friend. PV Reporter was created to provide “easy access” to pertinent information on polycythemia vera (PV), essential thrombocythemia (ET), and myelofibrosis (MF).

MPN Research Foundation

Partner. Advocate. Friend. Funding groundbreaking research. Changing lives. MPN Research Foundation is helping people with an MPN live a better quality of life as we work toward answers to prevention, progression and a cure for polycythemia vera (PV), essential thrombocythemia (ET), and myelofibrosis (MF) – blood cancers collectively known as myeloproliferative neoplasms.

Patient Power

Partner. Advocate. Friend. Patient Power works hard to help patients be informed consumers who play active roles in their own care. When that happens, patients typically do better. Watch, read and learn from their library of programs featuring top medical experts from around the world, dedicated advocates and knowledgeable patients and care partners.

MPN Advocacy & Education International

MPN Advocacy and Education International is dedicated to providing the knowledge, support, and resources patients will need as they adjust to living with an MPN through educational symposia in several cities each year, website access, free webcasts of each program, collateral materials, and direction to people, resources and other organizations that can help.

MPN Voice

MPN Voice’s mission is to provide clear and accurate information and emotional support to everyone who has been diagnosed with a myeloproliferative neoplasm (MPN) and their families/friends. MPN Voice has members across the UK and in many other countries throughout the world.

MPNforum Magazine

MPNforum Magazine is an open source online publication managed and staffed by patients and caregivers with the volunteer participation of scientists, hematologists, and healthcare providers. A timely source of scientific information, news articles, patient stories and more.

MPN Education Foundation

MPN Education Foundation is a 501(c)(3) non-profit organization run by volunteer MPN patients. Our foundation and mission goals include; information, education, support and our patient conference scheduled every two years at the Mayo Clinic in Scottsdale. Our efforts are designed to advance research, educate MPN patients and caregivers, and provide an online support group MPN-Net currently with 3,000 members from around the world.

Leukemia & Lymphoma Society

Leukemia & Lymphoma Society (LLS) is a global leader in the fight against cancer. LLS funds lifesaving blood cancer research around the world, provides free information and support services, and is the voice for all blood cancer patients seeking access to quality, affordable, coordinated care.

The Fleischman Lab

The Fleischman Lab is dedicated to understanding the pathogenesis of MPN in order to improve treatments for this disease.

Patient Empowerment Network

Partner. Advocate. Friend. Patient Empowerment Network (PEN) is a 501(c)(3) non-profit organization. PEN’s programs enhance patient health literacy to enable shared decision-making and provide informational and educational resources to empower patients and care partners at every step of their cancer journey.

NORD, National Organization for Rare Disorders

NORD, National Organization for Rare Diseases, a 501(c)(3) organization, is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. NORD, along with its more than 300 patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.
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