One of the first recommendations for the newly diagnosed is to see an MPN Specialist.
For the newly diagnosed myeloproliferative neoplasms (MPNs) patient, one of the first recommendations is to see an MPN specialist. Financial burden can make this a difficult task. Even with healthcare insurance, the deductibles and copays can make this task financially overwhelming.
Refer to our helpful list below for the numerous organizations providing financial support and assistance with copay, coinsurance and medication assistance, travel to a cancer center, and many more programs for patients with an MPN blood cancer.
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Free MPN Patient Guides
Plain-language guides for patients and care partners. Free to download, print, and share.
An MPN diagnosis brings new terms, new lab numbers, and decisions you may not feel ready to make. Appointments are short. Questions come later, usually on the drive home.
These guides help you prepare. Each one explains your MPN in plain language and points you to the questions worth asking. Read it before your visit. Print it and bring it with you. Write your questions in the margins. Share it with the family members who help with your care.
Not sure where to start?
Just diagnosed, or not sure your doctor is an MPN specialist? Start with How to Choose Your MPN Specialist. Polycythemia vera (PV): Read A Guide to Polycythemia Vera, updated for 2026.
Myelofibrosis (MF): Read A Guide to Myelofibrosis, then fill out the MF Treatment Options and Discussion Guide before your next appointment.
A Guide to Polycythemia Vera (PV)
Learn more about the things you should know when it comes to Polycythemia Vera including causes, symptoms, and changes over time.
How to Choose Your MPN Specialist: A Resource Guide for Patients
For more information be sure to download our “How To Choose Your MPN Specialist: A Resource Guide for Patients.
A Guide to Myelofibrosis (MF)
Learn more about the things you should know when it comes to Myelofibrosis including causes, symptoms, and changes over time.
Myelofibrosis Treatment Options and Discussion Guide
Learn about available treatment options for Myelofibrosis and questions to use in discussion with your doctor.
These guides are for education only and do not replace advice from your doctor. Use them to start the conversation. Our guides are made possible by educational grants from industry partners.
Co-pay and Medication Assistance
CancerCare Co-Pay Assistance Foundation
We help people with cancer overcome financial access and treatment barriers by assisting them with co-payments for their prescribed treatments. We offer easy-to-access, same day approval over the phone and online.
Good Days (formerly Chronic Disease Fund)
Good Days is a non-profit advocacy organization that provides resources for life-saving and life-extending treatments to people in need of access to care. Good Days offers assistance for copays for treatment, travel costs for medical appointments, monthly medical insurance premiums, and diagnostic testing.
HealthWell Foundation
HealthWell Foundation is a leading non-profit dedicated to improving access to care for America’s underinsured. We fill the gap by assisting with prescription copays, health insurance premiums, deductibles and coinsurance, pediatric treatment costs, and travel costs.
IncyteCARES
IncyteCARES is helping eligible patients with copay assistance for Jakafi® (ruxolitinib) along with ongoing support and resources during treatment. Our team can help you understand your insurance coverage and costs, identify financial assistance programs that may be available to you, set up delivery of your medicine from a specialty pharmacy, arrange for a temporary supply of medicine if coverage is delayed, provide education about your treatment or condition, and connect with other support services and programs.
Leukemia & Lymphoma Society
Leukemia & Lymphoma Society (LLS) offers the following financial assistance programs to help individuals with blood cancer. Copay assistance program provides assistance toward the cost of private, Medicare, Medicaid, and TRICARE insurance premiums, and treatment-related copays and coinsurance for prescription drugs, labs, scans, tests, etc. Award levels vary by disease fund. Other financial aid programs include Patient Aid Program, Susan Lang Pay-It Forward Patient Travel Assistance Programs, and Urgent Need Programs. Contact an LLS Information Specialist for more information about their Patient Financial Assistance Programs.
Medicine Assistance Tool (MAT)
Medicine Assistance Tool (MAT) is a free-to-use search engine that focuses its searches on patient assistance resources available to eligible patients. Building upon the Partnership for Prescription Assistance, MAT gives patients, loved ones, and health care providers a single point of access to hundreds of public and private assistance programs. Pharmaceutical Research and Manufacturers of America (PhRMA) created the Medicine Assistance Tool to provide a dedicated search engine that allows users to search for financial assistance programs available through the various biopharmaceutical industry programs available for patients who are eligible.
Nationwide Prescription Connection
Get long term prescription cost help for patients who are uninsured, underinsured, or have Medicare prescription coverage and are having difficulty paying for your medications.
NeedyMeds
NeedyMeds is a 501(c)(3) national non-profit that connects people to programs that will help them afford their medications and other healthcare costs.
Patient Access Network Foundation
The Patient Access Network (PAN) Foundation is an independent, national 501 (c)(3) organization dedicated to helping federally and commercially insured people living with life-threatening, chronic and rare diseases with the out-of-pocket costs for their prescribed medications. Since 2004, PAN has provided more than one million underinsured patients with $4 billion in financial assistance, through close to 70 disease-specific programs.
Patient Advocate Foundation Co-Pay Relief
We put patient and family peace of mind above all else. We provide direct payment for copays, co-insurance, and deductibles for patients who need financial assistance.
Patient Services, Inc. (PSI)
Founded by a patient for patients, we know the challengers of chronic illness. We’re here to help pay for your medication, provide health insurance premium and copay assistance, navigate health insurance plans, give legal advice, and be there every step of the way.
PharmaEssentia SOURCE
PharmaEssentia SOURCE is here to help you get access to BESREMiⓇ. Eligible patients can receive BESREMiⓇ for as little as $0 per month. This program covers copay, coinsurance, or deductible expenses for those who qualify. You may be eligible if you meet requirements, such as: having commercial (private) insurance that covers BESREMiⓇ, residing in the United States or a US territory, and having a valid prescription from a US physician for BESREMiⓇ. Restrictions apply and are subject to change.
RxOutreach
RxOutreach is a fully licensed nonprofit mail order pharmacy committed to helping people get the medications they need at an affordable price.
CTI BioPharma Corp.
CTI BioPharma Corp. is committed to helping patients, caregivers, and healthcare professionals access VONJO™(pacritinib) and the support they need.
Together with GSK Oncology
Together with GSK Oncology is a patient support program to help you and your doctor access a variety of reimbursement support and financial assistance offerings that you may be eligible for if you are prescribed a GSK oncology medication such as Ojjaara.
Airfare
Air Care Alliance (ACA)
is a non-profit 501(c)(3) organization whose mission is to promote, support, and represent public benefit flying through communication and cooperation among organizations facilitating flights for health, compassion, and community service at no charge.
Angel Flight Central (AFC)
is a volunteer non-profit 501(c)(3) organization whose mission it is to “Serve people in need by arranging charitable flights for health care or other humanitarian purposes.” AFC volunteers and supporters throughout the Midwest have made possible over 31,000 flights “free of charge” covering over 10 million nautical miles.
Corporate Angel Network (CAN)
is a 501(c)(3) organization that helps cancer patients access the best treatment by arranging free travel on corporate aircraft. Business jet travel makes it possible for patients, especially those located in areas with minimal airlines access, to travel to specialized medical centers. Participation is open to all cancer patients, as well as bone marrow and stem cell donors and recipients. Patients may travel as often as necessary and there is no financial requirement.
Mercy Medical Angels
is the largest charitable medical transportation system in the world. They remove the barrier to medical care with transportation on the ground with gas cards, bus and train tickets and in the air with flights flown by volunteer pilots and commercial airlines. Last year, they provided more than 24,000 free patient trips to clinical care.
Cancer Resource Database
Cancer + Careers
One of the broadest resource databases for cancer patients we have seen. Covering support services, employment, legal, insurance, financial, transportation, personal care, nutrition and more. Be sure to click on “view all” under each category and browse the entire site for a wealth of information.
Wind River Cancer Wellness Retreats & Programs
Finding information can be difficult and time consuming. To help make it easier for cancer survivors and their families, Wind River has gathered links to various resources that you may find helpful.
Federal Benefits (U.S.)
SSA.gov/Disability
The Social Security and Supplemental Security Income disability programs are the largest of several Federal programs that provide assistance to people with disabilities. Only individuals who have a disability and meet medical criteria may qualify for benefits under either program.
Benefits.gov
The official United States of America government website mission is to increase citizen access to benefit information. This website helps U.S. citizens navigate federal and state resources for which they may be eligible.
MedicareRights.org
The Medicare Rights Center is the largest and most reliable independent source of Medicare information and assistance in the United States for people with Medicare.
