6 Tips for MPN Cancer Patients to stay healthy during Coronavirus
by Lou Ann Donovan As states begin to reopen businesses and stay at home orders become less restrictive, people are starting to venture out in public more. Myeloproliferative Neoplasm (MPN) cancer patients are more vulnerable to the coronavirus because cancer and some treatments can weaken the immune system reducing the body’s ability to fight off […]
Telehealth Surges during Coronavirus outbreak
What is Telehealth? by Lou Ann Donovan Telehealth, also known as Telemedicine or Virtual Care, are broad terms covering all the ways healthcare providers remotely interact with their patients. Since the coronavirus outbreak, telehealth has become a highly effective method to evaluate and treat mild symptoms while minimizing a patient’s exposure to a potentially infectious […]
CALR Mutant MPN possible Disease Model of Cancer Immuno-editing
Authors: Morten Orebo Holmström, Sabrina Cordua, Vibe Skov, Lasse Kjær, Niels Pallisgaard, Christina Ellervik, Hans Carl Hasselbalch, Mads Hald Andersen Evidence of immune elimination, immuno-editing and immune escape in patients with hematological cancer Abstract There is mounting evidence that the immune system can spontaneously clear malignant lesions before they manifest as overt cancer, albeit this […]
Patient Focused Clinical Trials will Improve Next Generation Drugs
Improving the next generation of drugs through patient-centric design for clinical trials by Dr. Richard Ghalie (Senior VP for Clinical Development at MEI Pharma) When a process works, it’s natural to try to repeat it rather than recreate or rethink it. This holds true in running clinical trials to develop new drugs: the main path […]
Curcumin induces apoptosis in JAK2‐mutated cells by the inhibition of JAK2/STAT and mTORC1 pathways
Open Access Article – Petiti J, Rosso V, Lo Iacono M, et al. Curcumin induces apoptosis in JAK2‐mutated cells by the inhibition of JAK2/STAT and mTORC1 pathways. J Cell Mol Med. 2019;23:4349–4357. Original article Click here to download the PDF CLICK HERE for article – Nutrition for MPN Patients
Walking Pace Predicts Clinical Outcomes in Older Adults with Blood Cancers
Slower walking pace linked to a higher likelihood of death and hospital visits; Researchers say gait speed should be used along with other vital signs to better tailor care (WASHINGTON, June 5, 2019) — How slow—or fast—older individuals with blood cancers are able to walk four meters (about 13 feet) holds critical information about their […]
MPN Cancer Survivor Self-Care Tips
by Scott Sanders (guest author) A cancer diagnosis is devastating but it isn’t a death sentence (in most cases). Myeloproliferative Neoplasms, MPNs, are treatable and with self-care, the long-term impact on your daily life can be reduced. Taking care of your body and mind is essential to surviving and living well. Slow down One of […]
Anxiety and depression in Myeloproliferative Neoplasm patients
Nationwide Population-based survey in Denmark Objective: We sought to determine the prevalence and severity of anxiety and depression among patients with Philadelphia-negative myeloproliferative neoplasms (MPNs) and respective associations of anxiety and depression with demographic and lifestyle factors, comorbidity burden, duration of MPN disease, financial difficulties, and health-related quality of life (QoL). Methods: This study used […]
Benefit of Ruxolitinib Treatment in Polycythemia Vera by Dr. Verstovsek
Dr. Verstovsek on Benefit of Ruxolitinib Treatment in PV Srdan Verstovsek, MD, PhD, director of the Hanns A. Pielenz Clinical Research Center for Myeloproliferative Neoplasms at The University of Texas MD Anderson Cancer Center, discusses the benefit of ruxolitinib (Jakafi) in the treatment of patients with polycythemia vera (PV). Not only has the JAK inhibitor […]
Lou Ann Donovan
MPN Patient Advocate Lou Ann Donovan lives in Olathe, Kansas, a suburb of the Greater Kansas City area. She recently retired in the Fall of 2019 from The Salvation Army in Kansas City, Missouri as a Gift Planning Advisor. Then, after volunteering for two years with New Horizon Ranch Therapeutic Riding Center in Rantoul, Kansas, […]
MPN Cancer Connection partners with PAN Foundation on Medication Assistance Programs for MPN Patients
by David Wallace MPN Cancer Connection is very pleased to announce a new partnership with the PAN Foundation. Myeloproliferative Neoplasm (MPN) patients may be eligible for $8,500 per year (or more if a 2nd grant is needed/approved) in assistance assuming you meet the eligibility criteria which are very reasonable. The status is presently […]
Risk of Myeloid Blood Cancers are increased in relatives of patients
The largest ever study of its type is the first to definitively show an increased risk of blood cancers in relatives of patients. A team led by scientists at The Institute of Cancer Research, London, and the German Cancer Research Centre in Heidelberg have uncovered new evidence, supporting a role for inherited genetic changes influencing the […]
