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  David Wallace
  
  Founder & CEO of MPN Cancer Connection and PV Reporter | Patient Advocate
  When David was diagnosed with PV in 2009, at the age of 47, he soon learned there was limited and often conflicting information available on Myeloproliferative Neoplasms (MPNs). He also realized early on in his diagnosis, the importance of advocating for himself to best manage his polycythemia vera (PV). David was grateful for the early support and guidance of fellow MPN patients on his journey and wanted a way to give back to the MPN community. With a professional background in business administration and sociology, David has a passion for finding solutions and helping others. In 2013, David used his skill set to create PV Reporter, a comprehensive patient-focused website for MPNs. David refers to his site as a hub for patients to begin to research their cancer. Whether a patient, caregiver or healthcare provider, PV Reporter offers visitors a wealth of educational resources, patient stories, articles, and the latest news on the treatment for MPNs, helping MPN patients and their caregivers stay informed, connected and empowered. In 2015, along with the help of others, David founded a non-profit MPN Cancer Connection (MPN-CC), a patient-led 501©3 formed to create awareness that MPN patients are “cancer patients” and should have complete access to local and national programs and benefits. David’s philosophy is to educate patients to become their own advocates so that they can make informed decisions on their treatment. David’s dedication to the MPN community is further evidenced through his work and awards:
  - Selected to endorse 2018 NCCN guidelines for MPN patients by MPN Cancer Connection
  - Selected to represent the United States as a patient advocate by MPNs Advocate Network International Conference 2016-2019
  - Recipient of MPN Hero Award 2016
  - Published in MD Anderson Cancer Center MPN Focus Newsletter Fall 2016
  - Appearance on “The Doctors” TV show in 2015 to promote MPN awareness
  - Awarded Press Credentials for American Society of Hematology Conference 2014-2019
  - Contributor to Patient Power MPN educational videos
  David lives in Charlotte, North Carolina. When he’s not working, David enjoys spending time with family, listening to live music, attending outdoor festivals, watching the Carolina Panthers, riding his motorcycle, traveling and of course having his beloved Aussiedoodle Bailey by his side.
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Blog

March 14, 2019

Published by pvreporter at March 14, 2019

Categories

Anxiety and depression in Myeloproliferative Neoplasm patients

Nationwide Population-based survey in Denmark Objective: We sought to determine the prevalence and severity of anxiety and depression among patients with Philadelphia-negative myeloproliferative neoplasms (MPNs) and […]

February 1, 2019

Dr. Verstovsek on Benefit of Ruxolitinib in Polycythemia Vera

Published by mpncancer at February 1, 2019

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Blog

Benefit of Ruxolitinib Treatment in Polycythemia Vera by Dr. Verstovsek

Dr. Verstovsek on Benefit of Ruxolitinib Treatment in PV Srdan Verstovsek, MD, PhD, director of the Hanns A. Pielenz Clinical Research Center for Myeloproliferative Neoplasms at […]

December 21, 2018

PAN Foundation provides patient assistance program for medications for MPN patients

Published by mpncancer at December 21, 2018

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Blog

MPN Cancer Connection partners with PAN Foundation on Medication Assistance Programs for MPN Patients

by David Wallace MPN Cancer Connection is very pleased to announce a new partnership with the PAN Foundation. Myeloproliferative Neoplasm (MPN) patients may be eligible for […]

August 7, 2018

Published by mpncancer at August 7, 2018

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Blog

Risk of Myeloid Blood Cancers are increased in relatives of patients

The largest ever study of its type is the first to definitively show an increased risk of blood cancers in relatives of patients. A team […]

July 16, 2018

Published by mpncancer at July 16, 2018

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MPN Patient Advocacy Works

Brilliant work by Nathalie Cook lobbying the Australian Government for access to affordable drugs for Cancer Patients Inspiring, tenacious and rewarding work that will benefit the […]

April 9, 2018

Published by mpncancer at April 9, 2018

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ASH Partners with UNC, a ClinGen grantee to Curate Genomic data for Blood Research

Publisher’s Note: My source at the American Society of Hematology (ASH) informed me that “initially MPNs aren’t going to be a primary focus, however, we expect […]