A New Resource for MPN patients

MPN Cancer Connection

 

Welcome to MPN Cancer Connection, where a brighter future for MPN patients shines on the horizon with opportunity, new treatments and resources for improved patient care.

Goals

Are Myeloproliferative Neoplasms (MPNs) Cancer?

This is one of the most frequently asked questions by newly diagnosed patients, and one not clearly understood by many hematologist at the local level. YES indeed, MPNs including Polycythemia Vera, Myelofibrosis and Essential Thrombocythemia are blood cancers. That is why the term was changed from myeloproliferative disorder to myeloproliferative neoplasm. Check out the video below for a detail explanation by Dr. Stephen Oh.
 

What Are Myeloproliferative Neoplasms?

Myeloproliferative neoplasms (MPN) are a group of diseases that affect blood-cell formation. In all forms of MPN, a bone marrow problem leads to increased levels of blood cells circulating in the bloodstream. .
 
1) “Myelo” refers to bone marrow, which is the body’s blood-cell factory.
2) “Proliferative” refers to the rapid growth and production of cells.
3) “Myeloproliferative” means increased growth and production of bone marrow and blood cells.
4) “Neoplasm” means an abnormal growth of cells, especially as a characteristic of cancer.
 

Learn More

Learn more about MPN (Myeloproliferative Neoplasms)
David Wallace, our CEO, is recognized as a 2016 MPN Hero for his commitment to helping newly diagnosed patients with myeloproliferative neoplasms (MPNs) learn about their condition. He founded MPN Cancer Connection with the vision of sharing his experience as an "outspoken patient advocate" to help fellow patients get up to speed quickly and have the tools necessary to make educated decisions on treatment options.
2019 - Summer Update on the latest MPN research by Dr. Ruben Mesa, Director - UT Health San Antonio Cancer Center and Dr. Robyn Scherber.

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MPN Cancer Connection is a U.S. based, non-profit organization educating MPN patients by providing the necessary tools and resources to become empowered patients.

Blog

October 8, 2020
MPN clinical trials

Understanding the Phases of Clinical Trials

What are Clinical Trials? by Lou Ann Donovan Clinical trials also called interventional clinical studies involve research using participants.  Through clinical trials, doctors find new ways […]
September 21, 2020
4th Angel support for MPN cancer patients

4th Angel providing one-on-one support services for MPN Patients

MPN Cancer Connection and PV Reporter are partnering with the Cleveland Clinic 4th Angel Mentoring Program to better serve the needs of our growing community seeking […]
September 17, 2020
Imerman Angels MPN patient support

Serving the MPN cancer community with support services

As a small organization with limited resources, our goal is providing “easy access” to a growing network of organizations that provide services to our community.  Patients […]

MPN Cancer Connection Mission

To continue helping MPN patients by expanding the wide range of resources & patient education programs. While empowering patients to better understand treatment options and improve patient care by recognizing MPNs are a cancer, offering access to a broad range of benefits and program assistance.

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