A New Resource for MPN patients

MPN Cancer Connection

 

Welcome to MPN Cancer Connection, where a brighter future for MPN patients shines on the horizon with opportunity, new treatments and resources for improved patient care.

Goals

Are Myeloproliferative Neoplasms (MPNs) Cancer?

This is one of the most frequently asked questions by newly diagnosed patients, and one not clearly understood by many hematologist at the local level. YES indeed, MPNs including Polycythemia Vera, Myelofibrosis and Essential Thrombocythemia are blood cancers. That is why the term was changed from myeloproliferative disorder to myeloproliferative neoplasm. Check out the video below for a detail explanation by Dr. Stephen Oh.
 

What Are Myeloproliferative Neoplasms?

Myeloproliferative neoplasms (MPN) are a group of diseases that affect blood-cell formation. In all forms of MPN, a bone marrow problem leads to increased levels of blood cells circulating in the bloodstream. .
 
1) “Myelo” refers to bone marrow, which is the body’s blood-cell factory.
2) “Proliferative” refers to the rapid growth and production of cells.
3) “Myeloproliferative” means increased growth and production of bone marrow and blood cells.
4) “Neoplasm” means an abnormal growth of cells, especially as a characteristic of cancer.
 

Learn More

Learn more about MPN (Myeloproliferative Neoplasms)
David Wallace, our CEO, is recognized as a 2016 MPN Hero for his commitment to helping newly diagnosed patients with myeloproliferative neoplasms (MPNs) learn about their condition. He founded MPN Cancer Connection with the vision of sharing his experience as an "outspoken patient advocate" to help fellow patients get up to speed quickly and have the tools necessary to make educated decisions on treatment options.
2018 - Update on the latest Myeloproliferative Neoplasm (MPNs) research by Dr. Ruben Mesa, Director - UT Health San Antonio Cancer Center.

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Check out the MPN Booklet, 2017

Click on the Book icon for the MPN Booklet. Myeloproliferative Neoplasm publication used with permission of The Leukemia & Lymphoma Society, 2017.

Blog

June 10, 2019
old man with MPN blood cancer walking with cane

Walking Pace Predicts Clinical Outcomes in Older Adults with Blood Cancers

Slower walking pace linked to a higher likelihood of death and hospital visits; Researchers say gait speed should be used along with other vital signs to […]
March 27, 2019
MPN cancer self care tips

MPN Cancer Survivor Self-Care Tips

by Scott Sanders (guest author) A cancer diagnosis is devastating but it isn’t a death sentence (in most cases).  Myeloproliferative Neoplasms, MPNs, are treatable and with […]
March 14, 2019
mpn patient with depression and anxiety

Anxiety and depression in Myeloproliferative Neoplasm patients

Nationwide Population-based survey in Denmark Objective: We sought to determine the prevalence and severity of anxiety and depression among patients with Philadelphia-negative myeloproliferative neoplasms (MPNs) and […]
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