A New Resource for MPN patients

MPN Cancer Connection

 

Welcome to MPN Cancer Connection, where a brighter future for MPN patients shines on the horizon with opportunity, new treatments and resources for improved patient care.

Goals

Are Myeloproliferative Neoplasms (MPNs) Cancer?

This is one of the most frequently asked questions by newly diagnosed patients, and one not clearly understood by many hematologist at the local level. YES indeed, MPNs including Polycythemia Vera, Myelofibrosis and Essential Thrombocythemia are blood cancers. That is why the term was changed from myeloproliferative disorder to myeloproliferative neoplasm. Check out the video below for a detail explanation by Dr. Stephen Oh.
 

What Are Myeloproliferative Neoplasms?

Myeloproliferative neoplasms (MPN) are a group of diseases that affect blood-cell formation. In all forms of MPN, a bone marrow problem leads to increased levels of blood cells circulating in the bloodstream. .
 
1) “Myelo” refers to bone marrow, which is the body’s blood-cell factory.
2) “Proliferative” refers to the rapid growth and production of cells.
3) “Myeloproliferative” means increased growth and production of bone marrow and blood cells.
4) “Neoplasm” means an abnormal growth of cells, especially as a characteristic of cancer.
 

Learn More

Learn more about MPN (Myeloproliferative Neoplasms)
David Wallace, our CEO, is recognized as a 2016 MPN Hero for his commitment to helping newly diagnosed patients with myeloproliferative neoplasms (MPNs) learn about their condition. He founded MPN Cancer Connection with the vision of sharing his experience as an "outspoken patient advocate" to help fellow patients get up to speed quickly and have the tools necessary to make educated decisions on treatment options.
2020 - Summer Update on the latest MPN research by Dr. Ruben Mesa, Director - UT Health San Antonio Cancer Center and Dr. Robyn Scherber.

Like us on Facebook!

Visit our Facebook page to receive updates on MPN Cancer Connection information, events, fundraisers, stories, and resources!

Follow us on LinkedIn!

MPN Cancer Connection is a U.S. based, non-profit organization educating MPN patients by providing the necessary tools and resources to become empowered patients.

Blog

March 26, 2021
Algorithmic approach to patients with suspected CALR-positive MPN

Contemporary Approach CALR Positive MPNs

Abstract CALR mutations are a revolutionary discovery and represent an important hallmark of myeloproliferative neoplasms (MPN), especially essential thrombocythemia and primary myelofibrosis.  To date, several CALR mutations […]
December 11, 2020
managing MPN fatigue

9 Tips to Reduce MPN Fatigue

by Lou Ann Donovan When you are living with a myeloproliferative neoplasm (MPN), fatigue is the most frequent symptom discussed among fellow patients.  One minute you […]
November 2, 2020
clinical trial in myelofibrosis

Common Clinical Trial Acronyms and Abbreviations

by Lou Ann Donovan Are you searching for an MPN clinical trial and wondering what all these acronyms and abbreviations listed in the trial study details […]

MPN Cancer Connection Mission

To continue helping MPN patients by expanding the wide range of resources & patient education programs. While empowering patients to better understand treatment options and improve patient care by recognizing MPNs are a cancer, offering access to a broad range of benefits and program assistance.

MPN Cancer Connection
Malcare WordPress Security