A New Resource for MPN patients

MPN Cancer Connection

 

Welcome to MPN Cancer Connection, where a brighter future for MPN patients shines on the horizon with opportunity, new treatments and resources for improved patient care.

Goals

Are Myeloproliferative Neoplasms (MPNs) Cancer?

This is one of the most frequently asked questions by newly diagnosed patients, and one not clearly understood by many hematologist at the local level. YES indeed, MPNs including Polycythemia Vera, Myelofibrosis and Essential Thrombocythemia are blood cancers. That is why the term was changed from myeloproliferative disorder to myeloproliferative neoplasm. Check out the video below for a detail explanation by Dr. Stephen Oh.
 

What Are Myeloproliferative Neoplasms?

Myeloproliferative neoplasms (MPN) are a group of diseases that affect blood-cell formation. In all forms of MPN, a bone marrow problem leads to increased levels of blood cells circulating in the bloodstream. .
 
1) “Myelo” refers to bone marrow, which is the body’s blood-cell factory.
2) “Proliferative” refers to the rapid growth and production of cells.
3) “Myeloproliferative” means increased growth and production of bone marrow and blood cells.
4) “Neoplasm” means an abnormal growth of cells, especially as a characteristic of cancer.
 

Learn More

Learn more about MPN (Myeloproliferative Neoplasms)
David Wallace, our CEO, is recognized as a 2016 MPN Hero for his commitment to helping newly diagnosed patients with myeloproliferative neoplasms (MPNs) learn about their condition. He founded MPN Cancer Connection with the vision of sharing his experience as an "outspoken patient advocate" to help fellow patients get up to speed quickly and have the tools necessary to make educated decisions on treatment options.
2018 - Update on the latest Myeloproliferative Neoplasm (MPNs) research by Dr. Ruben Mesa, Director - UT Health San Antonio Cancer Center.

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Check out the MPN Booklet, 2017

Click on the Book icon for the MPN Booklet. Myeloproliferative Neoplasm publication used with permission of The Leukemia & Lymphoma Society, 2017.

Blog

February 1, 2019
Dr. Verstovsek on Benefit of Ruxolitinib in Polycythemia Vera

Benefit of Ruxolitinib Treatment in Polycythemia Vera by Dr. Verstovsek

Dr. Verstovsek on Benefit of Ruxolitinib Treatment in PV Srdan Verstovsek, MD, PhD, director of the Hanns A. Pielenz Clinical Research Center for Myeloproliferative Neoplasms at […]
December 21, 2018
PAN Foundation provides patient assistance program for medications for MPN patients

MPN Cancer Connection partners with PAN Foundation on Medication Assistance Programs for MPN Patients

by David Wallace MPN Cancer Connection is very pleased to announce a new partnership with the PAN Foundation.  Myeloproliferative Neoplasm (MPN) patients may be eligible for […]
August 7, 2018

Risk of Myeloid Blood Cancers are increased in relatives of patients

  The largest ever study of its type is the first to definitively show an increased risk of blood cancers in relatives of patients. A team […]
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